I know when we first started our Odyssey with Matthew, we had a lot of questions. Especially when it came to seizures.. There are so many different types of seizures it is unreal! Who would have thought that Matthew would have a "laughing" siezure or who knew it was a seizure whenever he was moving his legs constantly like he was riding a bike? Yes, that's controversial but I know for a fact that they were seizures because as soon as He was put on medication for seizures the cycling stopped.

Anyway. I added a link to the right side of this page entitled "Myoclonic Jerk Video". Or you can click of the title of this post to get to it.
I know I searched everywhere all over the net and couldn't find a video of a myoclonic jerk so I could see if that was what Matthew was having. So i hope this video helps you if you've found this site searching for Myoclonic Videos.
I forgot to mention that lipsmacking. He did that right after the myoclonics and would have a "chill" run all over his body and would have the "shivers".


Matthew was younger when he had these. He outgrew them and now he has one or two tonic seizures a day. I don't have those on video yet. What are tonic? Well just imagine the myoclonics ten times worse as what you see in his video. Instead of one right after the other, he has one and holds it. His face gets white as a sheet. His lips have not turned blue.. yet but he holds it for about 10 seconds and his arms and legs are stiff. He always has his towards the right. It is followed by some quick body jolts but only about 2 or 3 jerks... We heard that if you multiply the siezure he's having now times 5, it will probably take the form of a grand mal siezure which is also a form of tonic siezures.

The best way to explain the seizures to your doctor is NOT to "explain them" but get it all on Video.

Matthew is sound asleep. We are leaving Monday for TN. Yep, Back to the Mountains! I love it. I feel like a bird out of prison when we visit the mountains. It's not been very long that we have been able just to pack up and go whenever we wanted. One reason, the main reason is because matthew was a "cry baby".. He would fuss and whine everywhere we went, non stop and nothing could stop him unless we got him out of his wheelchair and held him. I have a totally different little boy now. He will sit for hours or lay for hours if I let him. He smiles when he gets up and smiles when he's going to sleep. He NEVER cries or fusses.. only when he's hungry.! Praise God for that and I don't want to ever forget how much he has changed. An answered prayer again. He is really living up to his screen name "angelbaby" now.
Charlotte

Here is some information on the types of seizures.. this is not all of them but the most common type of seizures.

Seizures are generally divided into 2 main types:

Focal: involving a limited brain region
Generalized: involving the entire brain. Therefore always associated with loss of consciousness.
Focal seizures may spread to the rest of the brain, therefore becoming focal seizures with secondary generalization.

Partial (focal) seizures
Simple partial seizures (without loss of consciousness)
With motor signs (uncontrolled muscle movements)
With somosensory or special sensory symptoms (smell, vision,...)
With autonomic symptoms (nausea, blood pressure changes,...)
With psychic symptoms
Complex partial seizures (with loss of consciousness)
Simple partial followed by a loss of consciousness
Impaired consciousness from the onset
Partial seizures evolving to generalized seizures
Simple partial with secondary generalization
Complex partial with secondary generalization
Simple to complex to generalized
Generalized seizures
Typical absence seizures (petit mal): consists of staring for a few seconds then returning to full function, where activity was left at the onset of the seizure, as if nothing occurred. The patient has no recollection of the event. This is unlike most other seizures that will be followed by as after seizure (or postidital) drowsiness and confusion that may be prolonged at times.
Myoclonic seizures: Usually presents with rapid muscle jerks. These may be caused by:
Benign (non-epileptic myoclonus): similar to the jerks one has when falling asleep.
Benign myoclonic epilepsy: A rare disorder that starts between 4 months and 2 years
Severe myoclonic epilepsy: A disorder that results in chronic progressive brain damage
Lenox-Glastaut syndrome: A severe epileptic disorder, associated with atypical absence (atonic and myoclonic), slow spike–wave complexes on EEG, and mental retardation.
Clonic seizures:
Tonic seizures
Clonic tonic seizures (grand mal)
Atomic seizures: Loss of muscle tone (drop effects)
Unclassified epileptic seizures: seizures that do not fit in the above classification, such as neonatal seizures and febrile seizures.

1 comments:

Kelly said...

Hello! Boy, I hate seizures! I can watch that video and know exactly what you are worried about. A lot of that to me looked like Infantile Spasms... a couple looked like myoclonics. At this point, they really all run together sometimes. The "baby falling" is definitely Infantile Spasms. Also, I notice the turning of the whole body or just the head to one side... that is also IS.

Myoclonics are more like sudden jerks, or instant head drops where the body goes limp. You can almost feel them better than you can see them, if that makes sense. Its hard to tell on the video. Myoclonics are very, very quick, but a lot of that looked like IS.

I'm sorry. I'll try to edit some video of Jenelle during her IS, which was very, very similar to what I saw here. I'll have to email you that though!

Hugs - we'll get through this!
Kelly, Jenelle's Mommy