Our Little Odyssey

I love you Grand Maa

2010-07-12T13:31:45.823-07:00

I love you Grand Maa

So proud of you. You have to do what is best for y...

2010-05-15T20:55:05.687-07:00

So proud of you. You have to do what is best for you, your hubby and for Matthew.
Love the picture of Matthew.

Great Charlotte! You are one of the most amazing M...

2010-05-09T03:36:06.017-07:00

Great Charlotte! You are one of the most amazing Moms and person I have ever know. I am proud to be able to claim you as my friend and sister!

Matthew's pen pals from Ellington LOVED this p...

2010-05-08T21:10:13.894-07:00

Matthew's pen pals from Ellington LOVED this pic and the others you sent. So much their teacher had to post them on their classroom bulletin board!! They want to be able to see him whenever they want
:) Thank you for sharing Matthew with us.

This is precious Charlotte!!! Looks professional e...

2010-04-20T11:12:30.582-07:00

This is precious Charlotte!!! Looks professional even! I love it! Hugs sweetie!

So Matthew's is a lot worse? I know I did rese...

2010-04-07T23:26:02.257-07:00

So Matthew's is a lot worse? I know I did research on the pump before he got it. Saw a lot of pics and video but I only saw the incision where in the front. I didn't see the spinal incision and the where they ran the line from the spine to the pump. I was thinking that was done endoscopically. I think they just went in their after surgery and beat him with a hammer is what I really think they did ... that's what it looks like. Poor baby.

I hope Matthew is feeling better. I don't hav...

2010-04-05T20:35:38.023-07:00

I hope Matthew is feeling better. I don't have any suggestions or thoughts about what happened. My daughter has a pump but her wound area didn't look anything like Matthews. I hope he improves and quickly. Barb Brown

So that means the nurse must have pushed to far in...

2010-04-03T19:42:24.158-07:00

So that means the nurse must have pushed to far into his scrotum to bruise it like she did? He did have to be cathed but just long enough to remove some urine.. That makes perfect sense.

They might have put a foley cath in him during the...

2010-04-02T23:05:32.986-07:00

They might have put a foley cath in him during the surgery. I know with Finny they put a cath in when they did his hip and he kept testing positive for blood in his urine even when they took it out. I was like man I can cath him at home and that doesn't happen what kind of mauling did they do on him in the OR.

Matthew here's hoping that the antibotics gets...

2010-04-01T20:33:55.349-07:00

Matthew here's hoping that the antibotics gets rid of the junk in your chest so you can get to go home to look for the eggs that the Easter Bunny left for you.
I cannot believe how relaxed his legs look and look at his arms. Wow what a difference the pump has made already.
Hugs to all.

Thanks.. I just noticed there was a big boogey on ...

2010-03-29T10:57:12.815-07:00

Thanks.. I just noticed there was a big boogey on his chest right after he sneezed.. a sweet little boogey. lol

"God Bless You Matthew" That was a great...

2010-03-29T05:56:57.075-07:00

"God Bless You Matthew" That was a great sneeze!! I loved your smile after:-) xxx

"Bless You Matthew!" What a sneeze;-) So...

2010-03-29T05:54:47.412-07:00

"Bless You Matthew!" What a sneeze;-) So cute!!

Ahhh.. I remember Mr. Finnian! How old is your da...

2010-03-28T22:50:53.598-07:00

Ahhh.. I remember Mr. Finnian! How old is your daughter?? I do think they could be brothers for sure. It's just that angel gene they get from God.

I was showing my daughter the picutres you had don...

2010-03-21T01:37:26.756-07:00

I was showing my daughter the picutres you had done she is 7 years old. She was asking how you got their pictures on the magazines and then we came to Matthews picture. The first thing she said "How did the lady put a picutre of my Finnian on a magazine?"You should have see the look on her face. I told her that it wasn't Finnian it was Matthew. Her reply " Well you could have fooled me".
Love the pictures

If Matthew didn't have such extreme high tone ...

2010-03-14T19:34:35.301-07:00

If Matthew didn't have such extreme high tone in his legs, it wouldn't bother him so much. The tone is causing him to keep it pulled up and when he is moved or his diaper is changed, the heads of the femurs rub the hip sockets and it has become very painful. I hear that kids do ok with their legs out of socket for a along time but I guess that's the ones with low tone. Just our luck. lol

Finnys left hip has not been in the socket for abo...

2010-03-14T17:42:00.738-07:00

Finnys left hip has not been in the socket for about 2.5 years. He started not to want to bear weight on it. Can't blame him. He will have to go back to get the other one done evntually. Finnian is low tone in his trunk and hip region. He just has tightness in his arms and one of his ankles.

does he have the pump? Matthew's already had t...

2010-03-13T21:11:05.692-08:00

does he have the pump? Matthew's already had tendon release AND bilateral hip surgery in 2005. He started having trouble a Year later with his right leg. They said he was NOT a candidate for the pump without even testing.. if he could have got a pump, I honestly believe his legs would still be in the sockets.

Good to here form you again. Gald to see Matthew i...

2010-03-13T19:03:30.581-08:00

Good to here form you again. Gald to see Matthew is doing good.
Congrats to your son and his wife on the beautiful twin baby boys

I print out his list of meds with the medications,...

2010-03-13T19:01:59.218-08:00

I print out his list of meds with the medications, mg's and the times he gets them at home. On the side we have check of boxes that gets signed this is all for my records. Every pill is brought to me uncrushed and still in the pharmacy wrappers. I will crush them and add only water to them in fromt of the nurses and then give them myself. I am very anal over his meds because Finnian is on the keto diet. I check every IV bag and question everything that is run through the IV. They are always glad to see us go home well I should say me the parnoid Mother.
Glad to see that the Baclofen is giving him comfort. Finny just got one hip done we go back in 6 mths to get the other one done.

2007-02-27T04:00:00.000-08:00