Lennox Gastaut?? Could it be?

Here's an email I sent to my support group friends. Hopefully there is something to this. I will be calling the neurologist as soon as I hear back from some of them.

We've been going through a variety of siezures the past year. I was researching and found that Lennox Gastuat sounds like what Matthew has. It's also possible because of Matthew's severe brain malformations (Static Encephalopathy). I was doing some comparisons and hoping someone might could help me see if this is possible. If so I also found that felbamate was a good seizure med for treating LG. I would like to know side effects. Right now we are on Klonopin, Phenylbarbitol, Lamictal and Keppra. I'd rather have him on ONE drug that is known to help these type of seizures than on so many where I don't even see where they are helping..Here's what I found on the WWW: My comparisons are in bold.
This syndrome is characterized by presenting multiple types of seizures. The most common are tonic seizures, atypical absence seizure and atony. It could also present with generalized tonic-clonic, partial or myoclonic seizures.Myoclonic seizures can occur before, during, or after the atonic seizures.

One type of seizure Matthew has is Myoclonic Jerks. Almost every morning he has a series of myoclonic clusters. Usually last about 3-4 minutes, followed by cold shivers.
That's when he acts like he's falling and reaches out to grab on.. starts out lasting about 5 second in between jerks and he grunts or sometimes cries in between. He ONLY has these when he's waking up. No loss of conciousness with these, just chills.
Associated manifestations are more common in atypical than in typical absences and include eyelid or perioral myoclonus, progressive flexion due to loss of postural tone, and localized motor phenomena, such as neck-stiffening or head-nodding
He has clonus in his feet and after the jerks are over he has clonus really bad without putting any pressure on his feet. Both of his legs will shake really fast. I can bend and rub his legs and it stops.Tonic seizures occur most frequently when falling asleep, but they can occur at any time of the day. They may also be precipitated by stimuli such as noise, contact, or movement.
We walk on pins and needles around here trying not to make a loud noise but even the slightest noise can trigger a tonic seizure.
Matthew has tonic siezures whenever he's getting really tired but mostly if he's startled by things like a door shut, or even if you drop a pen or pencil... Or he can scare his own self while sucking his bottle and have a siezure. His neck, arms legs and body bow, his head and body clenches toward the left, he stares towards the left. He gets very stiff. Then his mouth opens and draws downward. (looks like someone that's had a stroke) His face gets red splotches. When it's over he has subtile jerks and severely weak( is this atony?) and then he goes to sleep, depending on how long the seizure lasted. He can have anywhere from one to 6 of these a day. The longest one was 10 seconds.. What are the side effects of Felbamate and should I present this to our neurologist?
Felbamate has been shown to be effective for LG. In many cases, control has been achieved with this monotherapy, with minimal adverse effects

I'll post later about what we find out.
Charlotte