Our Little Odyssey: 25 Days after surgery update.. (GREAT!)

25 Days after surgery and Matthew is almost healed up completely. He is a trooper and is one very courageous little boy. He's had his pump turned up 3 times and is at 65%. Today was his first day without having any oral baclofen. He'll still get the 10mg at night until we get the pump turned up again in a week, then no more oral baclofen. He is a lot more alert and responsive.. He doesn't pass out every time he's in his chair. He's still sore and whines at night if I don't get up and move him at least every 2 hours now. The incision on his back is almost healed. Photo makes it look back but it's not. Finally, I feel we have made the right decision. He is NOT in any pain anymore from his hips being out of socket. The muscles are have loosened up enough that they are not constantly pressed again his hip socket. The neuro says there is NO reason for him to have a hip surgery if he's not hurting. There are kids like him that can't walk that have hips out of socket and live with it. I will take him to the orthopedic surgeon here and see what he says. It's obvious that having the pump has relaxed him so much more that he is no longer having constipation problems. We've had to give him babylax, just to get him to do anything. Now we are not having to give him anything. I think he's enjoying that part a little too much.. 3 times already today. lol
We are doing the happy dance.. Thanks for all the prayers. If it were me that had this surgery I would probably be walking around whining and feeling sorry for myself. You know Matt only shed real tears the first week and after that he just whined to let us know he was still hurting but usually stopped after we repositioned him or gave him pain meds. He is my hero!
The last pic is one we made for his PenPals in Ellington Connecticut when his teacher was here on Tuesday. Now, If I can just get it in the mail!